Research Participation Postings

This page lists current research participation opportunities that may be of interest to individuals or families. Participating in research can be rewarding in several ways, such as knowing the study you participate in will help other individuals or families with autism in the future. (If you're a researcher wishing to promote research participation opportunities with Autism Ontario, please visit our Guidelines for Researchers page to learn more.) The text of each posting is presented as it was submitted by the researcher.

Please see the research participation opportunities below. 

Making Madness: Mothers as advocates and activists in the territory of 'disability' and 'special education needs'

About the project:


We are a group of mothers who have advocated for children labelled with 'special educational needs' in a professional capacity as practitioners and researchers, as well as our for own children. Some of us are mothers of disabled children and have had direct experience of being identified as ‘overly-emotional’, ‘difficult’, ‘unreasonable’, and sometimes ‘ill/mad’ in the course of trying to ensure our children’s needs are understood and met by professionals.

We want to extend the conversation to other mothers with similar experiences. We would like to invite you to join us and a group of other mothers from Canada and the UK of children with disabilities or 'special educational needs' to discuss the following questions:

  1. What are mothers' experiences of seeking a positive outcome for their child and family, advocating for their child in education?
  2. How do mothers think they are understood, responded to and represented when undertaking advocacy work?
  3. What are the implications of these insights for policy and practice?

What the research involves:

The research will involve meeting online for two brief focus group discussions (two sessions, June 24th and June 30th, 9-10 am EST). Each group will last no more than an hour, and will involve between 5-8 mothers and two of the university researchers. Some of the mothers will be from the Greater Toronto Region, and others from Yorkshire, England, where researchers on our team live and work.

After we have met and got to know each other a little we will talk through the planned activities and check you are still happy to take part. We will fully understand if you change your mind and decide the project is not for you.

Who can take part:

Anyone in Yorkshire, England or Greater Toronto Area, Canada who identifies as the following:

  1. a mother to a child or children of children with special educational needs or a disability, and
  2. having engaged in activism or advocacy relating to their child's special educational needs or a disability.


If you're not sure you qualify, please fill out this form with your contact information, and we will reach out to you to discuss.  https://www.tinyurl.com/madmothering

This project was approved by the Brandon University Research Ethics Committee, Canada and the University Research Ethics Committee at The University of Sheffield, UK.

Investigating the role of camouflaging in Autism Spectrum Disorders

The Queen’s Visual Cognition Laboratory is seeking Autistic adults (e.g., Autism Spectrum Condition/ Disorder, Autism, Asperger’s Syndrome, Pervasive Developmental Disorder) for an online study on their lived experiences navigating social situations. This study will involve viewing videos and answering questions about the videos, your personal experience navigating social interactions, your mental health and some basic demographic information. Participants must be 18 years of age or older and be able to read and write in English. The study takes approximately 45 minutes to complete. To participate, click on this link https://mili2nd.co/i6zb. Prize draws (1 in 25 chance for a $25 gift card) are available.  

For more information about the study, please contact the Queen’s Visual Cognition Laboratory at qvcl.sub@gmail.com. Be sure to mention the FETTUCCINE study. All inquiries are completely confidential. 

READYorNot Brain-Based Disabilities Trial

WE NEED YOUTH VOICES!

We are now recruiting from Ontario, Alberta, New Brunswick and Nova Scotia.  $40 in gift cards for eligible participants ($20 after each online study visit).

We need youth aged 15-17 with Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida to help us test a new app about health care transitions. Right now we need youth from Nova Scotia, New Brunswick, Alberta and Ontario, but we’ll be looking for youth from other provinces soon too.

To join the study, contact: galuppi@mcmaster.ca

What is this study about?

The MyREADYTransitionTM BBD App was created to help youth prepare for health care transition. That’s when youth make the change from getting services from the children’s health care team, the children’s hospital or the children’s treatment centre to looking after their own health in adult services. We hope the app will help youth with things like learning about their health, knowing what questions to ask and when to ask for help.

Contact: Barb Galuppi or Nadilein Mahlberg Telephone: 905-525-9140, extension 27852 galuppi@mcmaster.ca

Who is behind this research?

This research is run by McMaster University (Dr. Jan Willem Gorter) and McGill University (Dr. Ariane Marelli) in collaboration with Hamilton Health Sciences.

This study has been reviewed by the Hamilton Integrated Research Ethics Board.

Learn more about this study at: https://www.child-bright.ca/readyornot

The Effect of a Parent Mediated Toilet Training Program on Children's Toileting Skills Delivered via Telehealth

Looking for Caregiver and Child Participants

Child must have a diagnosis of autism, between 2.5 – 8 years of age and repeat a minimum of 2 spoken words or actions Child must reside with the primary caregiver for the full duration of the 12 - week study

Time commitments for at least one caregiver:

  • A maximum of two, 2-hour telehealth training sessions which includes video recording of participants while practicing the steps with a doll (that you could keep), to then transfer the skills with your child
  • A minimum of 2-hours of support on the first day of training your child
  • Once a week, 20-minute telehealth follow-up consultations, for a maximum of 12 weeks 
  • Supporting your child daily as the primary caregiver, for a maximum of 12 weeks
  • Talking and forwarding data daily

Materials required:

  • Access and experience in using a computer/iPad with a built-in camera, email and internet speed of 25 Mbps

If interested, please contact:

Natalie Paquet Croteau, M.A., BCBA
1-705-618-4448
or by email at: ncroteau@ego.thechicagoschool.edu

The Chicago School of Professional Psychology

Organizational Benefits of Neurodiversity

Investigators: Lorne Hartman & Braxton Hartman
Research question: Do employees with autism bring new perspectives to employers that enhance organizational performance?
Eligibility requirements:
- Are you on the spectrum?
- Do you work at a job more than 5 hours per week?
- Are you over the age of 18?
- Do you have a stable internet connection?

If you are interested in participating and meet these requirements, follow this link to the survey:  Qualtrics Survey | Qualtrics Experience Management 

The survey will take 20-30 minutes to complete.

If you have questions, contact us at: lhartman@schulich.yorku.ca

Members of the Disability Community and their Perceptions of Disability Representation in the Media

Do you Enjoy Watching and Talking about Television and Movies with People?

If you do, please consider joining this research study. In this study you will be watching a media representation that features a character with your disability, and then participating in a focus group with other individuals with the same disability to talk about what you watched.

This study is being conducted by Stephanie J. Cragg a Ph.D. student in fulfillment of her dissertation requirement under the supervision of Dr. Kathryn. D. Lafreniere at the University of Windsor.

To be eligible:

  • You must live in Canada or the United States
  • You must have one of these three diagnoses from a medical professional and have been diagnosed for over 6 months
    • A diagnosis of Turner Syndrome
    • A mobility impairment requiring a wheelchair for at least 80% of the day
    • A diagnosis of Autism needing minor supports
  • You must be 18 years of age or older
  • You must have an internet connection and a computer or tablet with video and microphone capabilities, or have a phone

Participants will receive a $30 Amazon electronic gift card for their participation.

To find out more information about the study, please contact Stephanie J Cragg at cragg2@uwindsor.ca.

This research has been cleared by the Research Ethics Board of the University of Windsor

 

Please share this information if you know of anyone who may be interested in participating in this study.

Autistic Self-Advocacy and Safety Online

My name is Jessica. I am an autistic researcher at Carleton University. I am looking for autistic adults to give feedback on my study about autistic self-advocacy and safety online. I want to make sure that it is accessible, relevant, and impactful for the autistic community.

What you will be asked to do:

1) Meet with me for 10 minutes over videoconference (e.g., Skype) to get more information about the study

2) Review some of the study’s documents (e.g., survey, consent forms)

3) Fill out a short online survey about your opinions on the documents and the study

4) Meet with me again for 1 hour online to give more detailed feedback

This will take no more than 2 hours of your time. You can do both meetings with audio only (no camera) or instant messaging.

Eligibility:

I am looking for adults (18 years or older) who:

1) Have an autism diagnosis or self-identify as autistic,

2) Are able to understand and communicate in English with or without support, and,

3) Use the Internet to share their experiences as an autistic person, and to promote autistic people's rights.

Compensation:

You will receive $10 (e-transfer or gift card) to read the documents and fill out the survey, and another $30 for the 1-hour meeting.

How to sign up: If you are interested in participating, please email me: jessica.rocheleau@carleton.ca.

The study is supervised by Dr. Sonia Chiasson and Dr. Kasia Muldner, and received clearance from Carleton University’s Research Ethics Board (#113229

Self-compassion and emotion regulation in Autistic adults

Self-compassion is a healthy way of relating to ourselves. Self-compassion involves being warm and understanding toward ourselves when we suffer, fail or feel inadequate, rather than ignoring our pain or being too self-critical. Research has shown a strong relationship between self-compassion and mental health and wellbeing. However, no research study has examined this in people with autism.

Researchers at Autism Spectrum Australia are conducting the first study on self-compassion in autism. The aim of this study is to understand whether Autistic adults’ capacity to be self-compassionate and ability to regulate emotions impact their mental health and psychological wellbeing. This study was designed with input from Autistic researchers. Findings of this study will help us decide if developing self-compassion is relevant and important for Autistic individuals to improve mental health.

Adults with and without autism are invited to complete an online survey. All participants will go into a draw to receive one of three $100AUD eVoucher. Participants may also be invited to be interviewed via zoom.

Contact person: Ru; Email: ryingcai@autismspectrum.org.au

Website: https://www.autismspectrum.org.au/about-autism/our-research/our-research-program/self-compassion

Recruitment has started. Recruitment end date is July 31, 2021.

Cognitive Rehabilitation (Mega Team) and its effects on emotional and behavioural regulation in ADHD, ASD, and CHD

The Department of Psychiatry at The Hospital for Sick Children (SickKids) is undertaking an exciting new research study where we will be looking to see if a video game can help improve behavioural control and working memory in kids. 

Who Can Participate?: You can help us out with our study if you are/or have a child with a diagnosis of either Attention Deficit Hyperactive Disorder (ADHD), Autism Spectrum Disorder (ASD), and/or a Congenital Heart Disease/Defect (CHD), are between 6-12 years of age, willing to come to SickKids for 3 study visits, and are willing to play the video game at home for 5 weeks. Compensation will be provided. 

Interested in Participating?: If you are interested in participating in this study and/or would like more information, please contact Taha Arshad.

E-mail: mega.team@sickkids.ca

Phone: 416-813-8210 

Parents Empowering Neurodiverse Kids: Strongest Families Neurodevelopmental Study

The goal of this study is to test two versions (group coaching & self-managed) of an online program designed for parents of children with neurodevelopmental disabilities who are dealing with behaviours that negatively impact the activities of daily life. Developed with parents of neurodiverse children, the program consists of 11 skill-based sessions with demonstration videos, audio clips, exercises, a resource webpage and a Parent-to-Parent online group.

Who can participate: Primary caregivers of children between 3-14 years old who are diagnosed with Autism Spectrum Disorder and would like help managing behaviours that are having a negative impact on the activities of daily life.

Visit www.crfh.ca/neuro for more details.

You may complete up to 2 hours per week of the online program and group coaching for 11 weeks. Participants will also complete online questionnaires and a telephone interview 3 times during the 10 month study. A $50 honorarium is provided for completing each of the questionnaires (up to $150).

To apply, go to: https://mystudies.ca/studies/neuro

Recruitment will continue until June 2021. If you have any questions, please email sf.neuro.study@iwk.nshealth.ca

This research is hosted at the IWK Health Centre and has been approved by ethics boards at the IWK Health Centre and McGill University.